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...The last day in February every year marks the annual celebration of Rare Disease Day, which was established in 2008 by The European Rare Disease Organization (EURORDIS). While most years that falls on February 28th, but every Leap Year Rare Disease Day falls on February 29th, the rarest day! In 2009, EURORDIS asked the US-based National Organization for Rare Disorders (NORD) to join the initiative and sponsor Rare Disease Day in the United States....

Food protein-induced enterocolitis syndrome typically affects infants and young children. It is also called FPIES – pronounced like the letter “F” followed by the word “pies.” FPIES is a rare type of food allergy that affects the digestive tract. Symptoms show up a few hours after eating. The hallmark symptom is severe vomiting. There can also be diarrhea, lethargy, dehydration, low blood pressure, and low body temperature. Milk, soy, rice, and oats are...

...continued periodically to this day. Teddy was diagnosed with multiple food allergies when he was a year old, and at 18 months he was diagnosed with eosinophilic esophagitis (EoE). He remains on an amino acid formula that he chooses to drink at school and be fed by tube at home. He has very few safe foods, though we are always working to find new foods that will be safe for him. The social and emotional...