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...a change is desired is important. Relationships with key people are important, but relationships with their staff are equally or sometimes even more important. Check out these pages or more information on Rare Disease Day events near you, or how to get involved. Now go and tell your story!! You can share your story or read stories others have shared with the rare disease community here on the 2016 Rare Disease Day website. In fact,...

Last year, we were very excited to see how the Teal Pumpkin Project took off! This concept started in Tennessee with the local food allergy group, FACET, and is now led by Food Allergy Research & Education (FARE). This year, we’ve noticed even more news coverage and buzz around this great initiative. One of my neighbors even posted about her family’s teal pumpkin, and encouraged the whole neighborhood to participate! This is great...

...the Holidays to help everyone stay sane! Check out this video – Ms. Miller, the founder and president of Allergic Girl Resources, Inc., discusses talking to relatives and friends when planning holiday events, reframing holiday meaning and connecting with the joy of the season. Will grandparents be helping care for the grandkids this holiday season? FAACT just developed a comprehensive guide to help grandparents caring for kids with allergies right here. How great is this?...

...“Can I eat this?” At holidays, parties and family and school events, parents will eventually hear “Can I eat this?” from their child with food allergies. Hopefully, you have taught your child to always ask before taking a bite! You may not have had time to fully investigate the requested food, which requires not just reading the label, but may require calling the manufacturer of the prepared food. Consulting websites such as www.foodallergy.org or...

...eosinophilic gastroenteritis, eosinophilic colitis, hypereosinophilic syndrome, and other eosinophilic disorders. It is a great resource and provides accurate, up-to-date information on eosinophilic disorders and related problems. Not only does the organization increase awareness and educate patients and physicians, APFED also works to increase funding for research. Food Allergy Research & Education (FARE) FARE was established in 1991 to share information vital to raising a child with food allergies. Throughout the year the group holds events...

...can enjoy at any time. If no safe options are available, pack food from home and warn your child not to trade food with his/her classmates. Offer to bring in allergy-safe treats for holidays and special events. This way you know that your child is safe, and they won’t feel excluded from the fun! Communication and education is the most important part of going back to school with food allergies. Hopefully these tips will provide...

...the new app provides that can help you keep a detailed food allergy journal: Track events and share reports with your healthcare team: Diaper changes, symptoms, sleep times, meals, bottles, mood, weight, height and head circumference. Attach images and notes to any event, such as a diaper or skin rash. No need to guess when a specific event happened, how many wet diapers your baby had that day, or what that rash looked like last...

...word itself says ‘I’m possible’” ~ Audrey Hepburn “No one can make you feel inferior without your consent.” ~ Eleanor Roosevelt “A woman is the full circle. Within her is the power to create, nurture and transform.” ~ Diane Mariechild “Knowing what must be done does away with fear” ~ Rosa Parks “The most effective way to do it, is to do it.” ~ Amelia Earhart “You may not control all the events that happen...