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...long, exhausting days in the hospital. Multiple doctors came to see us trying to determine the cause of the fever. We had test-after-test-after-test done with no answers and a fever that just wouldn’t resolve. By process of elimination it was determined that he simply had a virus that he had to fight through. However, through test results, a GI doctor believed that his virus was possibly causing his liver to malfunction. The GI doctor told...
Neocate Celebrates Rare Disease Day<sup>®</sup>
Neocate Celebrates Rare Disease Day®
02/28/2018
...members on your needs in relation to your diet and rare disease. Let’s take a moment to go over some tips to help you be a better self-advocate. Know your “Ask”. Advocacy should be a call-to-action, so what action would you like the person or organization to take on your behalf? Remember your “ask”, and state it at the beginning and end of the conversation so everyone knows how they can help you. It can...
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