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...INTENDED AS MEDICAL OR HEALTHCARE ADVICE, OR TO BE USED FOR MEDICAL DIAGNOSIS OR TREATMENT, FOR ANY INDIVIDUAL PROBLEM. IT IS ALSO NOT INTENDED AS A SUBSTITUTE FOR PROFESSIONAL ADVICE AND SERVICES FROM A QUALIFIED HEALTHCARE PROVIDER FAMILIAR WITH YOUR UNIQUE FACTS. ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTHCARE PROVIDER BEFORE YOU TAKE ANY ACTION THAT MAY AFFECT YOUR HEALTH OR SAFETY OR THE HEALTH OR SAFETY OF ANOTHER PERSON. IF...
...patients developed esophagitis. EoE research was in its early stages back then, and many patients took a long time getting an EoE diagnosis or got a misdiagnosis. The participants answered questions about their symptoms and quality of life. The researchers then compared the results of each of the groups to see what differences really stood out. Patients with EoE reported a lower quality of life and experienced more trouble swallowing and had food become stuck...
Cow milk, a childhood staple and a key source of vital nutrients, is also the most common food allergen in early life. Like many allergic disorders, researchers and doctors aren’t sure of the exact cause of cow milk allergy or why some infants develop a milk allergy while others do not. Researchers are working to better understand factors that may contribute to cow milk allergy. Cow milk protein allergy is sometimes referred to...
...to do an oral food challenge. This is where the healthcare team gives a patient the suspected allergen and watches them to see what happens. If the symptoms happen again, that’s a positive FPIES diagnosis! For infants diagnosed with FPIES, introducing new foods slowly – one at a time and for up to three weeks – is extremely important to identify both safe and trigger foods. Once there’s suspicion of FPIES, there’s nothing to do...
...challenging situation. We were thrilled to welcome twin boys into our family (especially after having 3 girls in a row). From the get go these guys were miserable, fussy, and adorable. At first their diagnosis was uncertain. At 7 weeks of age they developed eczema (a very itchy rash) that gradually spread from their face to their torso in spite of multiple visits to dermatologists (and many topical steroids). Our babies slept little, grew very...
...to a new pediatrician. The pediatrician did an upper GI test and blood work that indicated both reflux and an allergy to milk and eggs. Laura asked about Neocate, an amino acid-based infant formula that she had discovered in her research. The pediatrician agreed that Aidan should try this hypoallergenic formula. “Neocate immediately made a difference,” says Laura. Summary: It took five long months for Aidan to receive a proper diagnosis of milk and soy...
...What is a Rare Disease? You may be wondering, “What is a rare disease?” Each country has a slightly different definition of what qualifies as a rare disease. A disease or disorder is defined as rare when it affects less than 200,000 Americans at a time. Because these diseases are rare, diagnosis is often delayed and funding for medical research on new resources and management options is limited. This lack of awareness and resources makes...
