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06/21/2017
04/04/2011
...I recently went to one of my 7 year old niece’s lacrosse games to support and cheer on the team. As with most kid’s sporting events at half time and at the end of the game, drinks and snackswere provided to all of the exhausted players to help replenish their energy. As I was sitting on the side-lines watching the snacks being handed out, I noticed that a snack-size trail mix was the snack...
03/15/2017
...501[c]3 non-profit organization that supports families in covering a major part of their expenses with medical nutrition in those cases where the child’s insurance is unable to help. The money they use to help these families comes from financial donations and fundraising events. CMNuA empowers, educates, assists, advocates for and supports ALL patients who require medical nutrition. In doing so, CMNuA has created the first-ever national coalition dedicated to enhancing the lives of all patients...
06/15/2017
...and how you eat, regardless if that includes a plan, specific structure, or even just eating whatever strikes your fancy and happens to be available at the moment. Yes, candy and pizza also make up a diet, just not a diet that is recommended. We all have many of these life or health events that can inspire a diet change. Perhaps you have planned a diet change in your life as a New Year’s resolution,...
Patient Perspectives – Teddy’s Feeding Tube Journey of Hope
...impact of having such a restricted diet is hard for him, but we read a lot of books about kids with food allergies and talk about how to manage when he feels sad or mad about it. School events that involve food are particularly hard on him. Life with a g-tube does sometimes require troubleshooting and work arounds, of course. Swimming happens in well chlorinated pools or the ocean, not small lakes or ponds. One...
09/10/2015
...Transition’ on this page of helpful resources. The key strategy for many transitions is a process called ‘fading.’ Fading involves adding the new formula (Neocate) to the old one in increasing amounts over time. It’s important to talk to your LO’s healthcare team to see if they recommend fading, and if it might work for you. (Sometimes, especially if food allergy symptoms are challenging, they may not want you to keep the old formula in...
05/10/2012
...local grocery store or mall food court. Also, if you aren’t already a part of a local advocacy organization, join one! They are likely to be hosting their own events this week so it’s a great opportunity to get involved. But, if there isn’t an organization in your town, now is the perfect time to start one! Help Raise Awareness Online If you’re on Facebook or Twitter be sure to post about FAAW. Or, if...
Parent & Patient Resources
06/26/2017
In this resource center, you’ll find answers to your biggest questions, tools to help you make the most of the time with your doctor and dietitian, real-life stories from other parents, reliable information on conditions, downloadable guides for using Neocate products, and much...
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