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...November has a lot of celebrations, some you know and some you might not be aware of. You might have heard of Thanksgiving and maybe even Movember movement to raise awareness for men’s health. But, did you know that November is also National Epilepsy Month? What is Epilepsy? According to the Epilepsy Foundation: Epilepsy is a neurological condition, which means it affects the brain, the main part of the nervous system. Epilepsy is a...
...Hillary Savoie, PhD is the Chief Communications Maman at the Feeding Tube Awareness Foundation (FTAF). She is also the founder and director of The Cute Syndrome Foundation (TCSF). Her daughter Esmé, who has two rare genetic disorders, PCDH19 Epilepsy and SCN8A, is four years old and the inspiration for her work with FTAF and TCSF. This post has been adapted from a post on The Cute Syndrome , Hillary’s blog about life with her...

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