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Hillary Savoie, PhD is the Chief Communications Maman at the Feeding Tube Awareness Foundation (FTAF). She is also the founder and director of The Cute Syndrome Foundation (TCSF). Her daughter Esmé, who has two rare genetic disorders, PCDH19 Epilepsy and SCN8A, is four years old and the inspiration for her work with FTAF and TCSF. This post has been adapted from a post on The Cute Syndrome , Hillary’s blog about life with...

...need to thrive. If your little one is on a very restricted diet, it may help to look for nutritionally complete amino acid-based formulas, like Neocate Infant or Neocate Junior, that will ensure these vitamins (along with minerals and macronutrients) are being taken in adequate amounts. Do you often find it hard to ensure your little one is getting all the vitamins he/she needs? What have you done to help this? – Christine Graham-Garo...

UPDATE: To read a more recent blog post on this topic, please read The Gut Microbiota and Its Link with Food Allergies. Also check out this post that explains the difference between probiotics and prebiotics. In recent years, there has been a lot of attention on gut flora, the good bacteria that live in your digestive system and play a role in proper digestion, nutrient absorption, immune function and bowel health. Research has...

It’s important for food allergy families to be aware of the potential for food allergens contained as inactive ingredients (aka “excipient ingredients”) in prescription and over-the-counter medications. We’ve talked before about the Food Allergen Labeling and Consumer Protection Act (FALCPA) of 2004, which requires food manufacturers to clearly label the presence of the top 8 allergens (milk, eggs, tree nuts, peanuts, shellfish, fish, soy, and wheat). This means that the ingredient list must...

The American Academy of Pediatrics recently published a study titled “Allergic Reactions to Foods in Preschool-Aged Children in a Prospective Obse r vational Food Allergy Study”. Since this is a topic near and dear to most of your hearts, I wanted to summarize their findings in today’s post. The authors studied 512 infants and preschool-aged children with likely egg or milk allergies to learn more about the frequency and circumstances of food related...

...rare when it affects less than 200,000 Americans at any given time. Looking for a list? You can find one here, thanks to the National Organization for Rare Disorders (NORD). Many of the medical foods that we make here at Nutricia – like Neocate products – are used by individuals with a rare disease. Our goal is simply to improve their lives through medical nutrition. Rare diseases include some food allergy conditions, like food protein-induced...