Patient Perspectives – I am 13 and I have EoE

Posted 5.18.16 | Nutrition Specialist

Hi my name is Zachary and I am 13 years old. I was diagnosed with eosinophilic esophagitis (EoE) at 13 months of age. I have had this disease my entire life.

Besides EoE, I have food allergies. In the beginning I was on formula only (an elemental diet, which is only amino acid-based nutrition) because there weren’t any foods that were safe for me to eat.  When I was 9 years old and in the 4th grade, I switched to E028 Splash. I was happy to switch to E028 Splash because it is premade in a drink box so I could just put it in the fridge for a couple of minutes and voila! There’s my meal! Throughout the years, the number of safe foods that I have has grown. Right now, I have around 40 safe foods. In the last three years alone I have gained 5 foods.

EoE impacts my everyday life since it restricts what foods I can eat. It has forced me to plan ahead by being prepared for every scenario. If I want to go to a restaurant with my friends, I have to make sure that there is something on the menu safe for me to eat, or bring my own food. I also have to bring my epinephrine auto-injector everywhere I go.

I am very excited that this week is National Eosinophil Awareness Week because I have a personal connection with its origin. In 2007, my family helped the American Partnership for Eosinophilic Disorders (APFED) to get this special week declared. I was one of the kid ambassadors that went to talk to members of Congress about eosinophilic esophagitis.  That was one of the best things that came out of having EoE!


For more information about EoE and National Eosinophil Awareness Week, please check out

Read Comments (5)

  • 2016-05-20 | Cathy

    Great blog, Zachary! It’s easy to forget the obstacles you face because you have such an awesome can-do attitude toward life!

  • 2016-05-20 | Andrea Champagne

    Zachary,  Thank you for sharing your story.  I am sorry your fate is with EoE; but, you are remarkable in your endeavor to educate and inspire the world to become more aware of the disease and hopefully find a cure!  I hope you stay strong and healthy!

  • 2016-06-21 | Charlie spruell

    A can do man. I appreciate your can do attitude! You are awesome - You inspire me and others!!

  • 2016-06-27 | Tess Crosby

    My hats off to YOU and I applaud you for doing this. Thank you for sharing your Story. Keep up the great work.

  • 2016-06-27 | Andrew Lynch

    Great Blog Zach! Stay strong with your EoE battle!

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Food Allergy Living is a resource for parents of children with food allergies, brought to you by Nutricia, the makers of Neocate. For more in-depth information about our purpose & authors, see our About Food Allergy Living page.