Your Search for: other gi disorders

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03/12/2015
...Hillary Savoie, PhD is the Chief Communications Maman at the Feeding Tube Awareness Foundation (FTAF). She is also the founder and director of The Cute Syndrome Foundation (TCSF). Her daughter Esmé, who has two rare genetic disorders, PCDH19 Epilepsy and SCN8A, is four years old and the inspiration for her work with FTAF and TCSF. This post has been adapted from a post on The Cute Syndrome , Hillary’s blog about life with her...
Neocate Celebrates Rare Disease Day<sup>®</sup>
02/28/2018
...The last day in February every year marks the annual celebration of Rare Disease Day, which was established in 2008 by The European Rare Disease Organization (EURORDIS). While most years that falls on February 28th, but every Leap Year Rare Disease Day falls on February 29th, the rarest day! In 2009, EURORDIS asked the US-based National Organization for Rare Disorders (NORD) to join the initiative and sponsor Rare Disease Day in the United States....
10/06/2011
...We’re always keeping our eyes peeled and our ears tuned for news and research on eosinophilic esophagitis (also known as EoE). This matters to us because many children with EoE use Neocate as part of their elimination diet to help manage EoE. The Study Dr. Charles DeBrosse and Dr. James Franciosi are part of a team at the Cincinnati Children’s Hospital Medical Center (CCHMC). The CCHMC has a Center for Eosinophilic Disorders. The team...
   
 
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