We know that the diagnosis of a food allergy or GI condition can sometimes be overwhelming for families. Fortunately, there are many great support groups out there that can help you find your footing with resources, advice and stories from other families going through similar situations. Here are a few that we have found helpful.
Founded by Gina Clowes, AllergyMoms provides support for parents of children with food allergies. The Web site and monthly newsletter features articles, food allergy recipes and the latest news and research on breast-feeding, hypoallergenic formulas, eczema, reflux, anaphylaxis and school policy.
APFED is an advocacy group for children and adults living with eosinophilic esophagitis, eosinophilic gastroenteritis, eosinophilic colitis, hypereosinophilic syndrome, and other eosinophilic disorders. It is a great resource and provides accurate, up-to-date information on eosinophilic disorders and related problems. Not only does the organization increase awareness and educate patients and physicians, APFED also works to increase funding for research.
FAAN was established in 1991 to share information vital to raising a child with food allergies. Throughout the year the group holds events to raise awareness about food allergies, including Food Allergy Walks in cities across the country. The FAAN Web site features an extensive database of allergy-friendly recipes, as well as links to other resources like local support groups and allergy camps.
Kids with Food Allergies (KFA)
Started by Lynda Mitchell, KFA is a nationwide nonprofit organization that offers online food allergy support groups, information, news, and allergen-free recipes for families raising children with food allergies. They have a new guide called KFA's Starter Guide to Parenting a Child with a Food Allergy that is especially helpful when you are first trying to understand food allergies, diagnosis and treatment. You can also subscribe to their bi-weekly newsletter for the latest updates!
Reflux Rebels was started by a group of mothers who all had children with reflux and food allergies. Their goal is to share the knowledge they have learned from their own experiences and provide advice to families going through something similar. The Web site features some helpful quizzes that can help you get an idea of what your baby’s symptoms mean and what treatment options are out there. They also run an active message board on BabyCenter for those of you looking to ask a question or just chat with other parents navigating reflux and food allergies.
We hope you find these groups helpful! There are also a number of local support and advocacy groups out there that are ready to lend a hand too. What groups have been good resources for you?
Next post: Ingredient Series – Fats: DHA and ARA