Patient Perspectives – I am 13 and I have EoE


Posted 5.18.16 | Nutrition Specialist


Hi my name is Zachary and I am 13 years old. I was diagnosed with eosinophilic esophagitis (EoE) at 13 months of age. I have had this disease my entire life.

Besides EoE, I have food allergies. In the beginning I was on formula only (an elemental diet, which is only amino acid-based nutrition) because there weren’t any foods that were safe for me to eat.  When I was 9 years old and in the 4th grade, I switched to E028 Splash. I was happy to switch to E028 Splash because it is premade in a drink box so I could just put it in the fridge for a couple of minutes and voila! There’s my meal! Throughout the years, the number of safe foods that I have has grown. Right now, I have around 40 safe foods. In the last three years alone I have gained 5 foods.

EoE impacts my everyday life since it restricts what foods I can eat. It has forced me to plan ahead by being prepared for every scenario. If I want to go to a restaurant with my friends, I have to make sure that there is something on the menu safe for me to eat, or bring my own food. I also have to bring my epinephrine auto-injector everywhere I go.

I am very excited that this week is National Eosinophil Awareness Week because I have a personal connection with its origin. In 2007, my family helped the American Partnership for Eosinophilic Disorders (APFED) to get this special week declared. I was one of the kid ambassadors that went to talk to members of Congress about eosinophilic esophagitis.  That was one of the best things that came out of having EoE!

-Zachary

For more information about EoE and National Eosinophil Awareness Week, please check out www.apfed.org.

Read Comments (5)

  • 2016-05-20 | Cathy

    Great blog, Zachary! It’s easy to forget the obstacles you face because you have such an awesome can-do attitude toward life!

  • 2016-05-20 | Andrea Champagne

    Zachary,  Thank you for sharing your story.  I am sorry your fate is with EoE; but, you are remarkable in your endeavor to educate and inspire the world to become more aware of the disease and hopefully find a cure!  I hope you stay strong and healthy!

  • 2016-06-21 | Charlie spruell

    A can do man. I appreciate your can do attitude! You are awesome - You inspire me and others!!

  • 2016-06-27 | Tess Crosby

    My hats off to YOU and I applaud you for doing this. Thank you for sharing your Story. Keep up the great work.

  • 2016-06-27 | Andrew Lynch

    Great Blog Zach! Stay strong with your EoE battle!

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Food Allergy Living is a resource for parents of children with food allergies, brought to you by Nutricia, the makers of Neocate. For more in-depth information about our purpose & authors, see our About Food Allergy Living page.