We’ve written before about eosinophilic esophagitis or EoE, but wanted to share some information today about an important advocacy group dedicated to patients and families with EoE and other eosinophilic disorders known as APFED – the American Partnership for Eosinophilic Disorders.
How APFED Got It's Start
APFED was started by Elizabeth Mays, a mother whose son had eosinophilic gastroenteritis, to create a place where families could “come together to share knowledge, educate themselves, arm themselves with credible information, meet and support one another, raise public awareness and generate research dollars.”
The group is an excellent resource for accurate, up-to-date information on eosinophilic disorders and related problems. Not only does APFED increase awareness and educate patients and physicians, the group also works to increase funding for research. There is some nice APFED videos on YouTube and you can also follow APFED on Twitter (@APFEDorg) to keep up with their latest news, announcements and events.
Annual APFED Conference for Caregivers
This weekend, July 16 – 18, APFED will be hosting their 8th annual parent conference, the 2010 Eos Connection, in Denver, Colorado. The conference is a great opportunity for children affected by eosinophilic disorders and their families to learn from experts and one another.
We will be attending the conference and look forward to seeing some of you there! Be sure to stop by and say hello, we will be filming videos of the attendees with our FlipCam to help increase awareness about eosinophilic disorders.